Frangible Murk

In this realm within which I currently reside, this frangible murk, there are no maps.  I can’t tell if I’m trudging towards an early death, as predicted by my Western docs, or clambering along a trail to a new found life as a wise old woman. Or both? It’s murky and I can’t see ahead, and at times can’t even tell up from down.  It’s dark in here.  At times the darkness prevails all the way into my soul and I long for death to end it: the abyss, the uncertainty, the effort of it all.

Light is there, too.  The light.  O the light.  Flashes from moments of kindness, my own and others.  A raindrop on a dogwood bud in the Fall, a globe of red and orange and green, trembling.  My dog Tara’s ear, like satin under my fingers.  The wind making our open windows rattle their storm dance late in the night.  The sound of the rain.  A burst of frail energy that shows me my next step.

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I’m reading voraciously: What Really Matter, by James Hollis, a Jungian, written in his own waning years.  He uses words I’ve never seen before, like “frangible” (that means fragile, or breakable).  Desuetude: I haven’t even looked that one up yet.  Many more. Hollis says feed your soul first.  If not, it will rebel and cause symptoms.  Do not comply with the shoulds of others.   He also writes that when we are dying, we are losing our “management systems” that have carried us through life for so long, and that makes us cranky.  Yup.  I am incredibly cranky lately.  If I’m cranky with you, don’t take it personally.

Just finished reading Mary Oliver’s Upstream, a collection of essays .  If I were rich, I’d send a copy to everyone I know.  Here’s a quote near the end.  “In the winter I am writing about, there was much darkness.  Darkness of nature, darkness of event, darkness of the spirit.  The sprawling darkness of not knowing.” She wonders if the light might be hope or faith; hope “far messier than faith must be.”

Then, last night, late, awakened by the storm, I heard the words as clearly as if someone had whispered them in my ear, “Be here now!”  Ah, Ram Dass.  Bless him.  But it wasn’t he who whispered.  I don’t know who it was.

But what I saw, or felt, in that moment, a moment of light, was a way out of the murk, a flashlight to illuminate my way.  The present moment opens to eternity – the only door, the portal.  I got a glimpse last night, and because it is a frangible murk, it’s already gone.  But the gift remains.

A messy hope, some wordless faith, a dropping away of the darkness that seems to result from a long illness.  As an idea, a platitude to offer someone who is suffering, well, it’s iffy.  “Be in the present moment, my dear.”  Meant well, surely.  But if the present moment, and all the zillions of moments before then, really suck, then it’s not so helpful. If you know me, please don’t give me this advice.  It doesn’t help.  I get cranky.

As a felt experience, elusive and grace driven, sensing the presence of eternal Love, well, that’s another story altogether.

Maybe what we can tell people who are suffering, you and me and all our loved ones, is to seek the portal to timeless joy, and let that joy carry us for a little while.  And that portal can only be found in the present moment.  Hiding in plain sight.

A wise young woman just told me tonight: “Don’t effort now.  Rest. You will recognize your next steps when you see them emerge into your life.  Trust yourself”.

Perhaps that is the map itself.  A frangible map, but a map.

 

 

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“Die Wise” Book Review

After reading the book Die Wise, by Stephen Jenkinson, I wrote a review for the professional journal for Hakomi therapists, called The Forum.  It’s an academic journal, so I am pleasantly surprised that they accepted my submission and published it.

Here it is.  If you wanted to read the book, maybe this will inspire you to do so, or give you enough that you can move on to whatever is next in your reading pile.

Book Review

 Jenkinson, Stephen. (2015). Die wise: A manifesto for sanity and soul.  Berkeley, California: North Atlantic Books. (382 pages).

Jenkinson, Stephen.  Griefwalker: a film about the redemptive power of deep love for life, when life glimpses its end. Produced by www.alivemind.net. DVD, 70 minutes.

Jenkinson, Stephen. How it all could be: A workbook for dying people and for those who love them. Published by www.orphanwisdom.com. 37 pages. (“Something that can be useful in the sorrowing heat of the moment, and in the time before and after”).

 

In early February of 2015, a doctor told me that I had Stage IV Kidney Cancer, and that I had about 2 months to 2 years to live. In my travels in this new-to-me realm of “imminent death,” I encountered Stephen Jenkinson and his book Die Wise. I devoured his eloquent language, his wisdom and experience that he shares so thoughtfully and carefully. His teachings fit seamlessly into the Hakomi Principles and deserve to be introduced in the Forum for others who may be approaching death, or those who have clients, family or friends who may be.

Jenkinson has a MA in theology from Harvard University and a MA in social work from the University of Toronto. He speaks around the world, is consultant to palliative care and hospice organizations, and is the founder of the Orphan Wisdom School in Canada.

For Jenkinson, high tech health care has become an undeclared war on dying itself. “If you can, you should” (p.23) is the mantra in our death phobic culture in North America especially, meaning you should do whatever you can to continue living, no matter what, no matter how much violence you do to the dying person, their body and their very soul. Dying wise goes against attempts to control and domesticate dying including palliative care. It is a way of redeeming our way of dying that is the right of everyone, a moral obligation, a political act, an act of Love, spiritual activism, and yes, immensely hard labor. Therein lies his manifesto.

Instead of a sedated, managed, defeated dying, (Cope, Hope, Dope) Jenkinson is talking about purposed, meaningful dying that roots us into our life in a way that nothing else can do. He doesn’t say not to use pain meds if they are needed, but to be mindful of each choice, each prayer, and what it accomplishes in a death phobic culture.

So, what would dying look like from a Hakomi perspective? We seek non-violence, organicity, a body-mind connection that is trustworthy, mindfulness in and of the process, and unity. That is precisely what Jenkinson is teaching once you read between the lines.  He also includes: village mindedness; caring for our ancestors and our dead, weaving them in our lives; breaking the trance of our death phobic culture; seeing dying as an angel, rather than an executioner, something you live, wrestle with, share and can teach to others.

Die Wise is not an easy book to read, especially for someone with a terminal diagnosis. He offers not even a thread of wiggle room. For example, people who are dying often ask for “more time.” He thoroughly demolishes that idea. If you get more time, you get more time to die, more death, “temporary citizenship in the Land of the Living.” (p. 133) He titles one chapter The Tyrant Hope. What he means is that if you are living focused on hope, you are living in the future, and are not present to your life that you actually still have. His alternative is to live hope free, which is a subversive move towards lucidity, a revolution of sorts.

He talks about Word Voodoo: if you say it, you can make it (death) happen, so no one talks to the dying person about their approaching death. No one will name it for fear they might make it happen. I’ve walked with some good friends during their dying time who carried this view. There was no way to be with them in any level of honesty and devotion. Jenkinson offers no place to hide.

Even the notion of “quality of life” as a deciding factor in dying is up for grabs with him. He believes that quality of life is a principle strategy in our culture’s project of dying–not dying. It enforces the addiction we have to competence, mastery and autonomy. It doesn’t serve the dying, who are anything but competent, and quite literally out of control. “If there were no palliative care, what would the arc of dying look like?” he asks. What if we respect the process itself, and listen deeply to what might be needed here? This is right up Hakomi alley.

Our culture says, according to this man who has worked in the “death trade” for decades, that we can die not dying. Dying, instead, in his view, must be allowed to change literally everything. As a person living this through right now, I have to say it really, really does change everything. Staying mindful to this cataclysmic shifting is challenging, and hard work. Jenkinson is a trustworthy guide.

The wisdom we seek can be found in suffering, from being broken-hearted, which for him is a skill. Wisdom comes from learning grief, and from practicing grief. Who asks us to be fulfilled in our dying, or to even thrive in our dying, or to be good at it? We need a faithful witness to our dying, not someone who will banish what is hard and demanding.

In Ron Kurtz’s language, we need someone with Loving Presence who can make being vulnerable and incompetent, safe; someone from whom we can receive comfort; someone who is not there to fix what cannot be fixed; someone who is aware that death goes beyond just humans, to trees, rivers, stones, even mountains. We need to proceed as if there is merit in knowing death well.

Jenkinson asks huge questions with a rare precision. He asks the question: When in human history did the death phobia begin? It’s not so in other cultures. How “natural” is it to be afraid of dying?

What if this insistence on dying being a trauma is the traumatizing thing about dying in our culture? High tech dying turns you into a victim. That’s not true for all cultures. In my opinion, high tech tends to do this to birth as well.

A large portion of Jenkinson’s book is about our dead: they are “a rumor, unclaimed and unknown.” Their bones are somewhere else. It is the orphan story of the Americas, which is a type of homelessness. The alchemy of belonging comes when we plant our dead and their bodies sustain that place. In our history we have slavery, people fleeing, flight as culture, no bone yard in common. People internalize “home” when they are homeless. That leads to a culture of autonomy, self-sufficiency, lonely multi-cultural cities. The outcome for the dead is, mostly, unknown. Even our Gods are homeless, not of a place. Even our foundational story, the Garden of Eden, speaks of the loss of home, the loss of eternity, of death. Indigenous cultures tend to have Gods who live on the same land that they do, embedded into the very earth.

When my mother was dying in our home, about two weeks out, she suddenly declared that she wanted to go home. No amount of saying that this was her home now, no amount of saying she was going home in her dying, appeased her. She had told me my entire life that she wanted to be cremated, and that’s what we had planned. But now she wanted to be buried, she wanted to go home, to Ohio I guess, where her family and her ancestors were buried.

Part of our fear of dying for Jenkinson is that the dying begin to understand that their very reality is pending. “They are on the Lost Nation highway, even as dying, not yet dead,” disappearing from the memory of those left behind. (p. 279) Amnesia is built into our care of our dead. They don’t need us anymore. They are mysteriously completed and self sufficient, above the fray. That is power, in a culture like ours. How will I be remembered, if at all, I wonder? Do I just disappear from life, from the human sphere into the realm of “the dead” that almost no one even thinks about?

Now that I am dying, I find myself turning to face those from whom I come, my ancestors, my own “dead,” trying to learn from them. We don’t treat our dead with any degree of hospitality, usually.

“Dying means to be wrecked on schedule.” (p. 300) Being sad is not being depressed, not something to fix. We need courage to stop trying not to die, and to relax into it. Dying can be achieved, not endured as we tend to see it. It can be learned. We can die wise. Dying is the time to untie the links of strength and competence that bind us to our bodies. Stopping eating is to “vote no” for keeping on. (p. 309) It turns the tide.

To die wise, we can “faithfully report on our ebbing days, the sway of it.” (p. 310) My husband will likely not have an escort when it’s his turn, a sorrow that brings me to my knees. Children need to know, too, to begin to get a feel for it.

“If you are attending a death, bring a soft focus, a slow gait in your thinking and your speech. Stay willing, be supple in your understanding, ask your eyes to stay open, wonder what is needed of you.” (p. 314) As Hakomi therapists, we have practice in working in the non-verbal realm, so this will help a great deal.

Dying people are busy trying to find their way out of their bodies and out of their lives, and there is scant language for this. (p. 315) I remember my Mom late one night describing being in a tunnel, about half way through. She had a new doctor “on the other side, who had done all the paperwork,” and now she wanted to know if she could turn around and come back. Exhausted, I told her that I didn’t know, but I would see her in the morning, or not, depending on her choice. We said good night and goodbye. And she was all sparkle in the morning; she did figure it out. She lived another few months after that. When my beloved companion David died, he was radiant and said that he could see the light all around.

“When dying is understood as justice, mercy, a sign of compassion that is stitched into the fabric of life itself, that can bring us into a world-loving, community-serving love of life.” (p.350) Then we can die wise.

“Grief isn’t an intrusion into the natural order of things. It is the natural order of things.” P. 367. It’s the ability of seeing the story of the thing, the whole story. We are grief impaired, grief illiterate. We learn instead how to manage it, resolve it, get over it. It’s not just the feeling of sorrow, or guilt. It is knowledge and understanding that each of us is obligated to live, for our life. “How you die grows kinship, a chance to practice unlikely gratitude, a way of loving,” and love is a way of grieving. (p.378) Jenkinson steps into the Unity principle easily and often. He is an unusual man, with language that delves deep into the heart of things, a poet, a storyteller, and a fearless angel of death.

 

The DVD Griefwalker is a lush, marvelous video of Jenkinson and his work, his language, his teaching. Again, there is no hiding place, no way to avoid death in this. He helps us take a long, deep drink into what it is and what it could be, how we got here, and what needs to change for it to be more organic.

His workbook, How It All Could Be brings a whole series of questions to the table. Here is his dedication:

This was made for all those who have come to me questioning, sorrowing, fighting and trying to lay low while their lives go as lives go, for the families and friends of those who didn’t live to see this done, for all those who asked for it. It was made with gratitude to the teachers and great rememberers out on the dangerous and darkening roads, where it all lives.

It’s a study guide to Die Wise, a shower of questions that incite deep reflections, conversations with shared ideas, delving deeper still into this concept, this manifesto of dying wise. He teaches that you wrestle the angel of death “by grief, by wonder, by courting uncertainty, by falling in love again with being alive, this time with the taste of its end strongly on your tongue.” It’s part study guide and part workbook, part meditation, and part kitchen table conversation. He wants us to work at this. It’s quite grand, and I recommend it to those who read his book.

As for me, I have only been using alternative medicine, and I am now, a little over a year later, a Stage III cancer patient. We don’t know what that means exactly, but I am learning to live hope free. I’m putting language to this journey in my blog www.SusanShawnAlive.wordpress.com. I keep my eyes open, and I’m learning how to die wise, as best I can.

 

 

 

 

 

 

 

A Life of Transfiguring Intensity

People often tell me  that I “look great”.  I think what they mean is “You don’t look like you are dying of cancer!”  I don’t.  That’s because I haven’t had surgery, chemo or radiation, I eat well, and am surrounded by loving care of every sort and on every dimension.  I live in the shimmering grace of gratitude and love.  And naps.  And my puppy, Tara.

People also tell me “we are all dying, you aren’t really all that different from any of us”, and what they mean, I assume,  is “What’s the big deal? None of us get out of here alive.”  Or, in the case of a few close neighbors, “We are all suffering from one thing or another, as we age. ”  A few might even add “Suck it up” but are too kind to say it out loud.

Now that I am living in the realm of “I will die someday”, rather than “I am going to die really soon!”, I can understand these comments better, those spoken or unspoken.  And let me try to tell you, these realms are in fact radically different.  Unless you have experienced the diagnosis of imminent death, I am not sure that there is a way for anyone to know this.  It’s not a concept, it’s a felt reality.

Eric and I have subscribed to a wonderful magazine named Parabola for decades.  Last summer, I picked up a copy of their Summer  2015 edition, about Angels and Demons.  There’s a wonderful quote on p. 93 that goes like this:

The denial of death is numbing.  But when I know for certain that I can disappear at any moment, it frees me from dullness.  Each instant becomes a possible starting point for something I have never done or said before.  The thought of dying opens a passage that, like the straight gate of the gospels, leads directly to a life of such transfiguring intensity, I feel as if I had risen from the dead.  

This is from a book by Carl Lehmann-Haupt, entitled The Crazy Thing.  Hope to read it soon.  He lived with a terminal diagnosis, then got better, but realized that he was becoming complacent again, and had lost something along the way.

The gift of a terminal diagnosis: a life of transfiguring intensity.  Yes.

At this moment in time, I have one foot in the “dying soon” camp and another foot in the “maybe I’ll live another 10 years” camp.  No way to know for sure.  I still feel like shit most of the time, so not much has changed there.  I’d like to keep the “transfiguring intensity”, however, from time to time anyway.  Instant clarity!

What I do notice is that I am beginning to get interested in life again, how I might be of service to others, seeing other people here in the village, taking care of business. (TCB for those of us who come out of the 60s!) Can’t do much about any of this yet, but I have my head up above the waters for the first time in about 5 years or more, taking a look around between naps.

Sending you all love.  Have patience with each other, because we never really know what someone’s journey is about, or where it may be going.

 

 

 

 

 

 

 

 

Mystery

Coming home the other day, I discovered what looked to me like a pile of sticks on our cottage front door, about eye level, not moving.  Hmmm…  I walked closer, quietly, and discovered to my deep and abiding surprise a praying mantis!  I know that nature talks to us just like the Shimmering in the written word, so after supper, I pulled open my animal discernment books.  What is the message?

The power of stillness.  Meditation. Chi Kung, using life force energy to strengthen and heal, directing it through the body’s organs and systems, empowering.  

One new friend here at Rose Villa heard about this, and sent me a link for more divination:

Praying Mantis animal spirit will often appear when calmness and contemplation are needed, not to sit still, but to reach a conclusion to a situation so decisive action may proceed. Even though Mantis is the symbol of meditation and contemplation she is also the symbol of action and decision-making.”

Praying Mantis animal spirit is often seen when major internal and external life changes are taking place.

Meaning of praying mantis on front door: “Praying Mantis at the front door of your home is a strong spiritual message, asking you to look within and approach your inner feelings for contemplation. Soon you will be asked to do something you are not comfortable with. Bringing about the need to change in this area, to give yourself a better life, by doing so you will expand and grow your higher consciousness.”

So, that’s quite a set of messages, all of which are pertinent and relevant.  Amazing.  Mouth open type amazing.

A few weeks ago I learned some new things about my cancer:

  1. “Nothing has changed since your diagnosis in February of 2015. No CT scan followup needed for a year, instead of 6 months.”  From my oncologist. Who reminded me, as always, that kidney cancer is slow growing, not to expect much.
  2. I am no longer eligible for hospice, whether I want them or not.  No one will state that I only have 6 months to live.  This shifted just a month ago.
  3. Two of the five lesions in my lungs have disappeared.  To me, that’s change, but hey, I am not an MD.  (Thank you Dr. Tenzin, I attribute this HUGE change to you and your magic Tibetan bowls on my chest! Hope to do some more.)
  4. No one is worried about my fatigue, as it’s not considered life threatening.  I do.  Hence the praying mantis, as my question has been: Now what?  Can I live like this much longer? How?
  5. I am no longer thinking of myself as living with a terminal diagnosis, but rather living with a chronic illness, at least until or if it shifts back.  No pain, just prone to sudden collapse  with extreme weakness, so I can’t plan, and need to rely on other people for nearly everything now.  A new realm, but it feels the same.
  6. I need help learning how to live with this, long term.  Help!

And then, an old friend of mine contacted me a few days ago, out of Facebook land.  She is an  acupuncturist, teaches medical chi gung, is a practicing Buddhist, and was a hospice nurse at one time.  Much to my everlasting astonishment and gratitude, she is coming next week and we’ll figure out a chi gung practice for me to blend in with the practices that I am already doing.  I am open to whatever she might want to share.

Another dear friend is excited to provide soul collage here at Rose Villa; all I have to do is set it up.  That is a wonderful discernment process and has helped me for years and years.

Eric and I are planning a short vacation up on Mt. Hood towards the end of the month; a time away with great sweetness.  I need to be in wilderness where I can think clearly.

Help is on the way!  (Wasn’t that John Kerry’s campaign slogan?  How did he get in here? Egads. )

May all of you find a way into your own next breath, your own path to joy. We stand with each other, we do.

 

 

 

Calling in More Support

Tuesday I met with my oncologist who revealed that my recent CT scan shows no change from 6 months ago. Actually, no change from 1 1/2 years ago, when I was first diagnosed. She agreed that I could go another year before the next CT scan, and warned me that kidney cancer is slow growing, something that she always does. In other words, don’t get your hopes up, you are fucking going to die of this thing, and don’t you forget it. Not quite that bad, but that is her essential message. She’s a nice woman and means well. She is limited in her imagination. That happens to some doctors, I’ve found.

Today I decided to enroll in hospice. Hang in there with me. No one, including me, (except maybe my oncologist, come to think of it) thinks that I will be dead in 6 months. However, I need more medical support. Hospice will send a nurse out to my cottage every two weeks, and I can talk about how the cancer is affecting my life, and get access to their extensive experience and resources. Medicare provides this for as long as I want it, given my diagnosis. So even if I live another 5-6 years, I can still be enrolled and not kicked out, as long as I am “not gaming the system”.

Eric really cannot do this for me; we neither know what the hell is going on at this point, or what to do about any of it. And my oncologist can only do surgery, chemo and radiation: the only 3 tools in her tool box. I can’t do any of that, for various reasons, and she agrees with me. So, this is my solution for now.

I am so tired it’s shocking and that hasn’t changed much. This is not the tiredness of being old, or run down. It’s very hard to describe. On some levels, I feel like I’m actually getting better, but the fatigue never shifts. It is crushing me slowly.

When dying is on the table, there is suddenly work to be done. Wills updated, various forms to fill out, powers of attorney and so on. I want to choose a cemetery with Eric, which naturally he doesn’t want to do. I look forward and have no idea how much time I have left. He looks forward and assumes I will be around for at least 5 years. Maybe, but maybe not. So the work is on multiple levels, and seems endless and overwhelming and I am desperate for help.

So, I’m going to try Hospice and see how it goes. They are open to alternative medicine, and support that, work with it all the time. This feels like a huge relief to me, even though it’s also disconcerting, a little scary. Reality check.

Am I still aware of the shimmering grace thing? Yes, I am. Am I grateful every day for small joys? You bet. Do I love all of you? Yes, I do. But I need some help in the medical realm. Even if it’s just for a few months until things even out again.

So, here goes.

PS: Remember “no change” report? I ordered the details from the CT scan, and one whole lesion (out of 5)in my lungs has disappeared. As did the cancer in the lymph nodes 6 months ago. Note to other cancer patients: try to always ask for the detailed reports. This is incredible news, and my doctor didn’t even mention it. I attribute this change in my lungs to the tremendous skill of my Tibetan doctor, Dr. Tenzin. And the Medicine Buddha and Green Tara, and all the prayers coming my way.

Grace, take 2.

The Shimmering Grace thing seems to be still working. I ordered a book quite awhile ago with nothing but the tittle to go on: The Power of Grace: Recognizing Unexpected Gifts on our Path.  (By David Richo)  Just shimmered at me while I was ordering another book on the Shambhala website.  It has been quietly living on our coffee table for months.

Meanwhile, I decided to have cataract surgery as a vote for even having a future in which to see anything, shimmering or not.  And now my next CT scan is on the immediate horizon, this Friday.  We’ll know next Tuesday what’s what.  The surgery went well a week ago but was stressful for a number of reasons, none of it too extreme. Nothing miraculous yet, but after my second eye is done, I am told I may be able to read without glasses.  We’ll see.  I haven’t been able to read without glasses since the 4th grade, so that would be fun.

My life is extremely limited now.  I have about 4 hours of energy a day.  Mostly I do laundry, make the bed, clean up the kitchen, water the gardens, comb out more loose fur from Tara’s heavy coat, walk to the village to pick up our mail, and I’m done – down for a 3 hour nap.  Talking on the phone is okay if it’s only one or two people, but in person visits wear me out after about one hour or so.  Usually in the evening I have another 2 hours or so of energy left.  Meeting with any groups over 4 people are a challenge.  Fun, and I love it, but still, a challenge energetically speaking.  So, living in a life the size of a postage stamp!  It’s still all good because it is, well, living.

So many people want to visit me now, it’s both daunting and also amazing to me.  I have no idea how to triage this, and often I actually just forget who wants to see me.  I need a list!  I can only realistically visit with one or two people a week, or less.  For people coming from out of town, we make room somehow.  Some of these journeys are perilous in nature so we honor them as best we can, floored by so much love.

What I’ve noticed is that people who do visit tell me, with some degree of surprise I guess, that I “look so well”.   Even the Tibetan doctor Dr. Nida said that my life force pulse is strong.  Good to hear.  More on that encounter another time.

My new, internally guided map making ground to a halt, though. I stopped the intense efforting I was doing, that was so successful, and then shut down, started eating chocolate chip cookies and reading novels.  And yes, resting deeply.

And that’s where the book, The Power of Grace, comes in.  I picked it up, finally.

Here’s the quote that caught my attention:  “Too much reliance on effort is one danger (a whole section on that, much to my surprise.  This book is exactly addressing where I am right now.)  but another is too little trust in the need for it.  Grace loses its meaning when it does not stir and spur us.  We then believe we lead a charmed life instead of being required to lead a responsible life.  When grace and effort work in an integrated way, we see that grace is a cue to us to exert ourselves.  We can be so pleased with grace, however, that we become overconfident.  We imagine that grace will keep coming our way with no follow-up needed on our part.  This is quietism. ”

Which is the opposite of activism, excess focus on effort.  Some have an idea that their effort will result in merit, which this author discounts pretty easily, both historically and throughout various spiritual paths.  Grace is pure gift, it’s not a reward for effort.  You don’t earn it.

The way out of this is to cultivate universal love, beyond merit or demerit, beyond too much effort or too little effort –  give myself utterly to loving -kindness, and let my heart lead the way, one step at a time.

Well, okay then.  I wish I would remember this, and not keep forgetting.  But I do.

About the upcoming CT scan?  I am completely freaked out.  Last time, in February, I went from a Stage IV to a Stage III.  This time?  Who knows.  I have some reason to believe that it will not be good news.  And also some reason to believe that it might be a fucking miracle.  I don’t think there’s much room for it being both/and but again, who knows.

Sending all of you oodles of love, and deep respect for your journeys, whatever they are.  Stay well.  Follow your heart.

 

 

 

 

 

 

 

 

Burn the maps

No maps for the realm I live in now.  I no longer know if I am living or dying, there is literally no way to tell.  I feel better in the past few days, and even went swimming a day or so ago with a new friend who is fearless, and also has a Stage IV cancer.  We celebrated our day of feeling well!  Two old gals having a great time!

But I remember all too well my recent “episode” as my primary doctor called my collapse a month ago. And the sense of my death there, waiting.  One new possibility to explain it: maybe I had a TIA, or small stroke.  No way to know, but it does kind of fit.  Bizarrely, this actually sounds like good news.  Maybe it’s not the cancer, coming back with a vengeance.  But I really don’t know.

This evening I walked over to the Rose Villa prayer group and while there, not my intention in going, I asked for help in discerning how to proceed in my life.  Showered with prayers!  I’ve never been a good praying out loud type person.  We didn’t pray in my childhood, no one I knew did that.  As an adult, I have all sorts of practices that I use in a skillful and reverent way, but praying out loud isn’t one of them.  It’s a great comfort to hear, and my heart is full of gratitude. An easing up of the feeling that I’m in this all by myself.

Here’s the thing:  how do I proceed in a sustainable way?  Without too much efforting, but with enough that I do get stronger over time.  Without being so careful that I no longer know my actual boundaries, but without stepping into another episode, either.

There are no maps here, no one to look to for advice, no tried and true resource.  No one knows.  What’s interesting is the shimmering, the shimmering grace I named this blog for.  That shimmering is saying “you need to turn inwards and seek your own deepest wisdom.”  That keeps coming up over and over again, in a wide variety of ways.

In Buddhism, guru yoga is a practice I’ve tried off and on for decades.  In it, you imagine the Buddha, or Green Tara, or Jesus or Mary, or whatever form of the Holy that inspires you – in front of you.  From their head a white light flows into your head, filling it with white light.  A ruby red light flows from their throat to your throat, filling your words with their wisdom.  Lapis Lazuli blue flows from their heart to fill your heart with their compassion and loving kindness.  And then you rest in this direct connection.  Not as easy as it sounds, but powerful.

Now I have been introduced to a variation of this practice by Christiana, my Tibetan healer here in Portland.  For this variation, I visualize Green Tara (for me, because I have a devotion to her) inside my heart, inside my own body.  Her white light fills my head, her ruby red throat energy fills my throat, and so on.  It’s a little more complex than this, but you get the idea.  Filled with her green light in my heart, I rest with that and at some point, I will ask for guidance and direction, from within my own soul.  It’s promising. And not easy to do.

One easy answer is to simply live in the Now, without any map into the future at all.  Yes, but that really doesn’t answer my dilemma of how to get stronger in a sustainable way.  One of the loudest voices from my family is to override all pain and all obstacles with a force of will.  Just do it.  That mantra.  I did that, and went from a IV to a III.  It worked, I was successful against all odds. However, I also discovered that in so doing, I was draining the energy pool underneath my whole being, the Jing energy, faster than I was replenishing it, if that is even possible at this point.  Some practitioners of Chinese medicine say that Kidney chi cannot be replaced.  When you run out, you die.  Others say that it can be replenished slowly and with great care.  That is what I want to do, or try to do, now.  But who the fuck really knows if it’s possible.   No one really knows.

So, more alternative docs on the horizon as I check out a few, slowly.  I shall see Dr. Nida who is a master Tibetan doctor coming to Portland in a few weeks.  Restorative yoga seems right to me now.  Laying outside on the grass in the sun, check.  Practicing a little chi gung, check.  Eating with mindfulness, a nourishing diet, check.  Walking around the Rose Villa campus when I can, yes.  Meditation, check.  Adrenal support capsules, okay.

A fragment of a new map is forming, one little piece at a time.  I can do this!

Thank you and blessings to all of you who offer me support in such a tapestry of ways, weaving a blanket of love to catch me when I fall.  May you know a deep and abiding wellness, the joy that lies beyond all suffering,  throughout your days.