Warning: Proceed with Caution

Many types of liminal spaces or thresholds, exist:  retiring from a lifetime of work, the death of a beloved spouse or friend, even starting first grade, for that matter.  Each one leads us through the twists and turns of new and uncertain ground, each one unique.

However, when we’ve lived intimately with our own impending death for some time, years, gazing across the Great Divide and preparing ourselves for that journey, then making the shift to recovery land can be extra perilous at times. We need to proceed with caution. Living with death strips us bare, beyond the bones to the very soul itself.  Every breath is golden, and we know it.  I eventually became open to and vulnerable even to the unspoken thoughts of others, moving in invisible realms.   Moving into recovery land requires reinstating some new protective methods, just to meet life again.  And that takes practice and experience.  Which means time.  I’m new to this.

Going cross country metaphorically speaking, some of my recent experiences talk of uncertain ground.  Have you ever hiked along a high country trail, maybe a little rocky, taking in the view, feeling your heart soaring with the joy of wilderness, and suddenly you look up behind you.  And realize you are in fact traversing a scree field from some previous landslide? You are too far across to turn around, and the ground begins to shed rocks and pebbles, rattling below you. In real time, this can represent a betrayal, or unseen violence touching you even from a distance, or your own reckless and overly enthusiastic nature.  Even the power of unexpected love and kindness, the excitement of seeing life and not death, can rattle our balance.

For example, I recently stayed at my sister’s house in Ashland. She has a bathtub!  I haven’t had a bath in over 4 ½ years.  Finally, the temptation was too great, and in I slid, under blissful hot water.  But then I couldn’t get out!  I tried 6 times, for well over ½ hour, and fell 4 times, sweating and breathing hard from the exertion and fear, grab bars not helping.    My legs were simply too weak to hold me up.  I was alone.  Swearing helped…  I finally figured out a way to do it, my body battered and my confidence shaken. Uncertain ground.

A dear friend chided me:  “You don’t need to test your limits!  Be careful!” So that is, in a nutshell, a vital lesson I share with you.  Probably not a good idea now to grab life with both hands!  Let it come to you in its own sweet and natural way.  Practice patience.  Or not.  Your call, of course.

Taking tentative steps into recovery land, here is another lesson I’ve learned recently:  If something feels off, remotely threatening in ways that don’t make cognitive sense, back off and wait.  Because we are still half in the land of the dying, extra sensitive to the max, we are not practiced or protected yet in what could be called normal life.  So songs of violence, torture, and murder, for example, might not be safe. I ran into an intense moment of PTSD with no warning, just Bam!  Danger in uncertain ground can be physical, psychic or spiritual in nature, and can happen in a flash.  True for everyone, but death is still hovering over my left shoulder.  Just makes it a little harder, is all.  I called a friend here in Open Mic land, whom I guessed might know the musician and his early music.  He did, threw me a climbing rope and hauled me back to stable ground, just listening and offering his take on it, providing cognitive safety. Whew!  Thanks, Tom!

Note to self:  add a climbing rope to my back pack of tools for this pathless path.

I wish someone had warned me of all this.  So now I’m warning you.  If you are friends or family of such tender, tentative souls, be aware and proceed with loving caution.  That’s tricky because we also crave being seen as, well, recovering!

A friend who successfully traversed this specific liminal ground ten years ago laughed when I asked her what’s next after recovery. “Recovered!” What a concept.  It’s nearly impossible to see from here, but I believe her.  I seem to be on my way.  Maybe.

Onward.

 

 

 

What’s in a Name?

True confession time:  When I was younger, I used to judge people who changed their names, not through marriage but seemingly just because.  I judged that to be unnecessary, annoying, and odd, very odd.  Why isn’t your given name good enough?  Why do that? Perhaps it was a hippie thing back then.  One I didn’t understand.  At all.

Fast forward to today.  Emerging slowly into Recovery Land after 10 years or so in Cancer Land, twice eligible for Hospice, whoa!  I’m now looking into and craving Life and Joy, grabbing on with both hands, fuck equanimity!  I got pretty good at preparing to die, grateful for the time to do so, but living is just so qualitatively different!  I’m happier and more open to joy, step by step regaining skills this time for living.  I do grab on to some friends, however, because it’s still a precarious place. If I’ve grabbed on to you, I hope you know that it’s not a permanent dynamic.   It just means that I trust you, a rare state for me.  “You’re supposed to take a slow ferryboat to the Far Shore, not an unstable kayak you’ve never learned to paddle”, says a character in a recent novel I read.  So yup, if I grab on to you from time to time, it’s the damned unstable kayak thing.  I’m learning.

How did this living thing happen, when I was supposed to be dying?  Joy and music:  Cat Stevens, Eva Cassidy, Richard Thompson, Joel Zifkin and his soaring violin, Kate and Anna McGarrigle, Levon Helm, even Nick Cave, listening for hundreds of hours of musical vibrational medicine, touching whole new realms of experience that continue to blow my mind.

And suddenly I see! Found myself a few months ago asking the universe to bring me a new name for my newly evolving soul.  Who am I now?  I need a new name to honor this transition, to celebrate and mark a moment in time. To inspire me to persevere, to hold not a wish, that’s too fluttery, but to hold instead an aspiration of whom I might actually become, if I get enough time now.

And lo and behold, a new name did in fact come to me.  I had to wait months for it, for the Shimmering Grace thing to emerge.  But I saw a few letters, S I S U, once on Facebook a few months ago, and thought that looked right but it disappeared.  Weeks later, it reappeared and I grabbed on to it, to take a closer look. Sisu.  Yes, that’s it!  It even feels good in my mouth as I say it.  It belongs there.  Sisu is a thing, by the way.  You can google it.

Sisu is a Finnish word and tradition, with a mystical, even magical meaning: an enigmatic power that enables people to push through significant hardship. It’s the ability to sustain courage.  To not seeing a silver lining in the clouds and yet jumping into the storm any ways.

Strength of will, determination, perseverance, dignity, acting rationally in the face of adversity:  This word goes back 500 years or so for the Finns, and includes hardiness, bravery and guts.  Not exactly my strong suits lately.  Well, maybe bravery.  A little. Rationality can be a little elusive, because I am a mystic at heart, an empath.

But here’s the thing.  We all have the potential of sisu, to defy the odds and hold on to hope when there at first seems to be none.  We can all stretch beyond our observed capacities, and begin where grit and perseverance end, akin to an extra gear of psychological strength.

According to the sisu ethos, we all have this, somewhere, inside ourselves: a second wind of mental stamina.

One aspect of sisu I especially like considering is the ability to transform barriers into frontiers, to transform or transcend the limits of our present knowledge.  Sisu is also a  verb, and is grounded in compassion and vulnerability.   And can take us into new realms.  Like Life itself!

And Greta from Sweden would approve of this: it’s grounded in open, objective observation of our environment.  The Finns know this place.

Let’s be very clear here.  I do not embody Sisu.  Not now, and maybe not ever.  But I do aspire to it.   By announcing this new nickname, I’m not bragging about sisu, but rather hope to be gifted by those who choose to call me that, with a reminder of how I’d like to be in the world, to have it function like a spiritual name.  It’s a way to reinforce that energy in me, and maybe you, too.  It’s a nickname, not a new legal name.

From the perspective of traveling cross country over the liminal space between Dying and Living, it’s a direction to pursue, a realm to believe is even possible: a point on the inner compass our hearts depend upon.  You know this place.

So to everyone here who ever changed your name, way to go!  I’m starting to understand.

And to everyone: sisu is not something you discover, its bedrock that is already there.  Above all, Sisu is a collective choice.  We are stronger together.  I wish that for all of us here and around the world.

Onward.

Turning the Tide of Cancer

So, go way back with me to September 2015, 6 months after I was told I was going to die, soon.  We used to live a block or so from the Willamette River, so I loved walking down there with my dogs, to see the slack tide event:  that’s when the tide comes upriver from the Columbia and the ocean, and meets the waters rushing down off the Cascades.  There is a moment when the waters stop, the river look like a silent mirror.  Then the waters turn, the magical master ebb and flow, twice a day.

On that day, I asked a pivotal question:  is it possible to reset my body back to a balance, to turn the tide of cancer back to a healthy natural ebb and flow.  I wanted something with no medical intervention, using a non-violent approach that I could watch mindfully.  For 30 plus years, I worked professionally as a body/mind therapist, and knew that the mind and body affect each other intimately, profoundly and non-stop.

Fast forward to today.  I recall feeling in 2015 that my life force was dripping out of my body, one cell at a time.  I recall going in there with my mind, finding the drain and plugging it up, metaphorically. And now I ask another pivotal question. I have kidney cancer.  In classical Chinese Medicine, all 12 major channels of energy in humans have their own type of chi or energy, and all but the kidney channel can be rebalanced and replenished.  Kidney energy, or Jing, is different.  We have just so much of Jing when we are born, and when it is gone, we die.  Period. Jing is related to life and death, reproduction, and certain types of fear.

However, Western practitioners of Chinese Medicine are questioning if Jing can be replenished. I have friends in that field. No one really knows, or at least I don’t really know.  I ask that question now, as it is literally life or death for me.

Hang in here with me.  Meanwhile, remember vibrational medicine and my love affair with Cat Stevens, and music? Where I went from Stage IV to Stage II cancer? Recently I have begun to notice a low, stirring buzzing type of hum throughout my whole body.  It’s come on slowly, and is exquisite.  It ebbs and flows.  It’s like all that music lives inside me now, humming.  Hundreds of hours of music, seeping into me gently, filling me back up slowly.  What it feels like to me is Jing, kidney energy, slowly ebbing back into my very being, speaking of health, joy, love and delight, life and hope and its just plain yummy stuff.

Sublime, to quote a dear friend.  But here’s my last tidal question re cancer:  Is this delicious life and love affirming tide a replenishing cellular tide, or is this my last gulp of Jing and then I slip away, to use Richard Thompson’s words.  No one knows, least of all me.  I just have to live into this.  In August, I have my next CT scan, so we’ll have a clue.  Maybe.

I think Willie Nelson has it right when he sings “Love is the greatest healer to be found.”  I thought it was joy, but I now think that Love envelops all joys. Seems obvious now, but sometimes I’m a little slow.

The vibrational tide of Love itself has me feeling, on my very rare good days, like I’m riding a huge, colorful, steaming dragon forward into deep fog, holding on for dear life, quite literally.  And laughing the whole way.

 

 

When Music Shimmers

So, in my 4thyear of living with Stage IV kidney cancer, on the advice of my Tibetan doctor, I decided a year ago to follow the traces of joy that come through my life, letting my heart guide my choices sometimes hour by hour.  Cat Stevens’ music arrived a few months later on my ipad, and I listened to his clear voice and joyful music for hours on end. My last CT scan reflected the wisdom of this path:  my cancer is now Stage II!  It worked! At least in my mind, anyway.

Things got deeply mysterious then. I’ll tell you the story.  Months later, I watched a video of Cat/Yusuf singing “I was born in Babylon”, with another guitarist who was, I discovered, named Richard Thompson.  Yusuf declares with vibrant awe “He is a star!”  So I checked him out.  He’s also from London, has written his own music for over 50 years and comes from a Scottish heritage.  Wow, can he play!  Resonating with him, I discovered a kick ass side to my nature that’s been mostly tucked away for 40 years or so.  Yippee! Began to listen to him for weeks, rocking out in my old lady way, figuring out his words.   He came to Portland in early February of this year, and my friend Jane took me to his concert at Revolution Hall.  What a musician!  For me, he’s funny, fantastic, brilliant, and a little scary.  A star, indeed! The Queen of England agrees.

Soon I noticed a new sound, a violin accompanying Richard that soars and soothes and touches my heart, all the way in.  By that time, I was part of a Facebook fan club for Richard. Odd, but true.  One day, someone there mentioned the violin player by name: Joel Zifkin.  I commented, “ O good, now I know his name.  He’s great!”  Within seconds, Joel responded to me, “Thank you!”

Electric shock!  “O my,” I think I stammered online, “You’re here!” And to myself, Holy Shit!  We are becoming friends, sharing music and stories. He turned me on to the McGarrigle Sisters from Montreal.  Joyous sound! He has played with them for decades – Canadian folk, but more than that:  a unique sound that I crave.  They are all friends: Joel, The McGarrigles, Richard Thompson and his family, weaving a tapestry of joy, love (over and over!) and great music pouring out everywhere. Joel’s violin blends them all together for me, surrounding me, tucking me in.

Joel started sharing his own music with me, an intimate thoughtful sound that is real, toe tapping at times, and somewhat mystical.  I take sips and savor his sound  before sleep. His words echo in my mind at times.

Levon Helm from the Band showed up with his infectious grin and his Southern style of joy.  He sings my current anthem, a song called Wide River to Cross.  “I’m only half way home, I’ve got to journey on.  I’ve come a long, long road but still I’ve got some miles to go, I’ve got a wide, wide river to cross.”  I know this place intimately.

We all resonate differently to music: such a personal, cellular thing.  What’s next, now that it seems I might have some time left?  Joel has a musician friend named J. Reissner who is intriguing.  On Youtube, he has a song called the End of my Line.  “I’m fading away, a little bit at a time, here at the end of my line.” Joel’s violin soars towards the end, and I realize I’d love to hear him playing at the end of my line, too.  Nice way to slip away.  But things change in a heartbeat, so I don’t know.

Here are my reflections on all this.  First, how the hell did any of this happen!  I wasn’t looking, just following my heart, looking for joy.  It’s the shimmering thing.

Secondly, I have self identified as Scottish all my life, with my maiden name of Kerr, complete with a red and green tartan and an attitude.  Richard Thompson is of Scottish heritage, too.  But I’m also French Canadian on my mother’s side, LaLonde, with a genealogical link back to the founder of Montreal, L’Archanbault. Her family was dark, Old Catholic and racist.  I denied them.  Now I have a link, albeit tenuous, with Montreal via Joel, to their land, and in an odd way, to my own heritage.

I have a French Canadian soul, a Scottish attitude, and it feels to me as though I’m coming full circle somehow.  Joel’s violin brings me home in a mysterious way, a completion that’s entirely captivating.

Back in cancer land, I decided to have my next CT scan in August, to see what impact, if any, these musical adventures might have.  Vibrational medicine exists; it’s a thing.  I will report back on that.  Prayers are always welcome.

Are there takeaways here? Sure.  Follow your heart.  Ask for what you want and need and mystery might step in.  Coming full circle can be a gift of being old and paying attention to what shimmers.  Never underestimate friendships forged on the internet, however brief or long.  Be very cautious, of course, but trust your heart. Connecting with others is good for your health and wellbeing, even on the computer.

And wouldn’t it be a trip if Joel came and played with us at Open Mic! The thing is, we have some really fine musicians here in Oak Grove, right here, right now.  Let’s give them all a hand!